Endometriosis Awareness
Posted on February 18, 2009
My friend Jeanne at Jeanne’s Endo Blog sent this email and I wanted to share it with you:
There are * 89 MILLION * women and girls in the world with endometriosis.Let’s give them a voice and get endo FACTS published in print for a change.If More magazine was able to do such a fantastic job on the topic of chronic illness, imagine what they could do with endo! Endo has the potential to impact patients’ careers, fertility, marriages/relationships, quality of life, pain management, etc.
Please take 6.5 minutes to watch this video. I would greatly appreciate your feedback on my first vlog!! I truly believe we have an opportunity to get endo patients’ voices heard. This illness impacts not just the patients but the loved ones of the patients as well.
Please join me in speaking up on behalf of all women & girls who have endo.
Endo is historically under-researched, results in discrimination against patients (just ask patients and many can tell tales of this), the condition is often misdiagnosed or under-diagnosed, etc.
Endo is a life-altering illness. Just in my local endo support group alone, more marriages/relationships than not end… due in part to the effects of the illness. Some women lose their careers over it. Many women have multiple surgeries and/or trips to the Emergency Room. The list goes on.
It is imperative that we get endometriosis featured in print in the mainstream media. I’ve had endo 27 years now (17 years of which were diagnosed). I have *NEVER* picked up a national magazine to find an article on the topic of endo. Never. The closest thing to that was when Julianne Hough of Dancing with the Stars was “diagnosed” with endo BEFORE having had a laparoscopy… and the media spewed out a bunch of misinformation that confused the public and even endo patients themselves… where endo was mentioned in articles about Julianne Hough but the articles were worded in such a way as to confuse readers about endo.
Endo patients deserve for endometriosis facts to be disseminated to the public. Instead, the rare endo-related media story to date has been on either ‘Dancing with the Stars’ dancers whose doctors “diagnosed” them without having first done a laparoscopy (the only definitive method for diagnosing endo)… or endo gets mentioned as the cause of infertility for a woman who went on to have IVF “to the extreme” that was performed by a doctor who clearly disregarded the standard protocol for transferring embryos. (I can’t even say her name because the story is too upsetting to me and other endo patients I know. I’m sure you’ve heard her story in the media recently… quite a bit)! I don’t know about you but I’m sick to death of that last story. I know many endo patients who have found thestory hurtful.
Let’s get a factual article about how endo affects real women written about in the mainstream media!!
If you have already signed the petition, please don’t sign again or the petition will essentially cancel you out. If you are unsure of whether you signed previously, simply scroll through the online petition and look for your name. If you haven’t signed the endo awareness & understanding petition, please do.
Please ask your family, friends, and loved ones to sign the endo awarenesspetition:
http://www.gopetition.com/online/22963.html
We have a chance to get a decent article on endo in the mainstream media via a national women’s magazine. In the 17 years since my endo diagnosis, I have yet to see such an article. Let’s make it happen!
THANK YOU,
Jeanne
Thank you Jeanne for your passion to help women with endometriosis. You are an asset to the cause. Your passion is contagious!
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